{"doi":"10.3389/fpsyg.2022.960373","title":"Information needs and development of a question prompt sheet for upper extremity vascularized composite allotransplantation: A mixed methods study","abstract":"Background: People with upper extremity (UE) amputations report receiving insufficient information about treatment options. Furthermore, patients commonly report not knowing what questions to ask providers. A question prompt sheet (QPS), or list of questions, can support patient-centered care by empowering patients to ask questions important to them, promoting patient-provider communication, and increasing patient knowledge. This study assessed information needs among people with UE amputations about UE vascularized composite allotransplantation (VCA) and developed a UE VCA-QPS. Methods: This multi-site, cross-sectional, mixed-methods study involved in-depth and semi-structured interviews with people with UE amputations to assess information needs and develop a UE VCA-QPS. Qualitative data were analyzed by thematic analysis; quantitative data were analyzed by descriptive statistics. The initial UE VCA-QPS included 130 items across 18 topics. Results: Eighty-nine people with UE amputations participated. Most were male (73%), had a mean age of 46 years, and had a unilateral (84%) and below-elbow amputation (56%). Participants desired information about UE VCA eligibility, evaluation process, surgery, risks, rehabilitation, and functional outcomes. After refinement, the final UE VCA-QPS included 35 items, across 9 topics. All items were written at a ≤ 6th grade reading level. Most semi-structured interview participants (86%) reported being 'completely' or 'very' likely to use a UE VCA-QPS. Conclusion: People with UE amputations have extensive information needs about UE VCA. The UE VCA-QPS aims to address patients' information needs and foster patient-centered care. Future research should assess whether the UE VCA-QPS facilitates patient-provider discussion and informed decision-making for UE VCA.","journal":"Frontiers in Psychology","year":2022,"id":275669,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":9,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9568,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2022-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":945227,"name":"Brianna Kuramitsu","orcid":"0000-0002-8067-1757","position":1,"is_corresponding":false},{"id":945228,"name":"Max Downey","orcid":"0000-0003-4874-1679","position":2,"is_corresponding":false},{"id":945229,"name":"Karen B. Vanterpool","orcid":"0000-0001-7177-217X","position":3,"is_corresponding":false},{"id":945718,"name":"Michelle Nordstrom","orcid":null,"position":4,"is_corresponding":false},{"id":945719,"name":"Michelle Luken","orcid":null,"position":5,"is_corresponding":false},{"id":945230,"name":"Tiffany Riggleman","orcid":"0000-0003-3624-6662","position":6,"is_corresponding":false},{"id":945720,"name":"Withney Altema","orcid":null,"position":7,"is_corresponding":false},{"id":945721,"name":"Shannon Fichter","orcid":null,"position":8,"is_corresponding":false},{"id":860670,"name":"Carisa M. Cooney","orcid":"0000-0002-5475-206X","position":9,"is_corresponding":false},{"id":945722,"name":"Greg A. Dumanian","orcid":null,"position":10,"is_corresponding":false},{"id":480723,"name":"Sally E. Jensen","orcid":"0000-0002-2078-3263","position":11,"is_corresponding":false},{"id":388908,"name":"Gerald Brandacher","orcid":"0000-0001-7790-441X","position":12,"is_corresponding":false},{"id":945231,"name":"Scott M. Tintle","orcid":"0000-0003-0887-7600","position":13,"is_corresponding":false},{"id":945232,"name":"Macey L. Levan","orcid":"0000-0002-4239-1252","position":14,"is_corresponding":false},{"id":404153,"name":"Elisa J. Gordon","orcid":"0000-0003-0969-1998","position":15,"is_corresponding":false},{"id":945226,"name":"Jessica Gacki‐Smith","orcid":"0000-0002-7000-9014","position":0,"is_corresponding":true}],"reference_count":48,"raw_metadata":null,"created_at":"2026-07-19T00:28:21.971703Z","pmid":"36132190","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}