{"doi":"10.3389/fneur.2022.961024","title":"Social determinants of participant recruitment and retention in a prospective cohort study of pediatric mild traumatic brain injury","abstract":"Background: Prior studies have shown poor recruitment and retention of minoritized groups in clinical trials. Objective: To examine several social determinants as predictors of consent to participate and retention as part of a prospective, longitudinal cohort study of children 8-16 with either mild traumatic brain injury (mild TBI) or orthopedic injury (OI). Methods: Children and families were recruited during acute visits to emergency departments (ED) in two large children's hospitals in the midwestern United States for a prospective, longitudinal cohort study of children 8-16 with either mild TBI or OI. Results: A total of 588 (mild TBI = 307; OI = 281) eligible children were approached in the ED and 315 (mild TBI = 195; OI = 120) were consented. Children who consented did not differ significantly from those who did not consent in sex or age. Consent rates were higher among Black (60.9%) and multi-racial (76.3%) children than white (45.3%) children. Among the 315 children who consented, 217 returned for a post-acute assessment (mild TBI = 143; OI = 74), a retention rate of 68.9%. Participants who were multi-racial (96.6%) or white (79.8%) were more likely to return for the post-acute visit than those who were Black (54.3%). Conclusions: Racial differences exist in both recruitment and retention of participants in a prospective, longitudinal cohort of children with mild TBI or OI. Further work is needed to understand these differences to ensure equitable participation of minoritized groups in brain injury research.","journal":"Frontiers in Neurology","year":2022,"id":274420,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":10,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.8297,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2022-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":942908,"name":"Jean‐Michel Galarneau","orcid":"0000-0003-3784-8753","position":1,"is_corresponding":false},{"id":942909,"name":"Nori Minich","orcid":"0000-0001-5448-220X","position":2,"is_corresponding":false},{"id":298769,"name":"Daniel M. Cohen","orcid":"0000-0002-0352-7989","position":3,"is_corresponding":false},{"id":943498,"name":"Kameron N. Clinton","orcid":null,"position":4,"is_corresponding":false},{"id":488230,"name":"H. Gerry Taylor","orcid":"0000-0001-9035-0853","position":5,"is_corresponding":false},{"id":337503,"name":"Erin D. Bigler","orcid":"0000-0002-3031-3919","position":6,"is_corresponding":false},{"id":943499,"name":"Ann Bacevice","orcid":null,"position":7,"is_corresponding":false},{"id":943500,"name":"Leslie K. Mihalov","orcid":null,"position":8,"is_corresponding":false},{"id":943501,"name":"Barbara A. Bangert","orcid":null,"position":9,"is_corresponding":false},{"id":943502,"name":"Nicholas Zumberge","orcid":null,"position":10,"is_corresponding":false},{"id":347981,"name":"Keith Owen Yeates","orcid":"0000-0001-7680-2892","position":11,"is_corresponding":false},{"id":942907,"name":"Jordee M. Wells","orcid":"0000-0001-5688-3074","position":0,"is_corresponding":true}],"reference_count":37,"raw_metadata":null,"created_at":"2026-07-19T00:28:12.324621Z","pmid":"36176559","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}