{"doi":"10.18865/ed.31.3.407","title":"Care and Precision Medicine Research in the Time of COVID-19","abstract":"Purpose: Enhancing the bidirectional benefit of precision medicine research infrastructure may advance equity in research participation for diverse groups. This study explores the use of research infrastructure to provide human-centered COVID-19 resources to participants as a part of their research participation. Design: New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources. Participants: A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call. Methods: Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone. Results: Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups. Conclusions: Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.","journal":"Ethnicity & Disease","year":2021,"id":212085,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":1,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9652,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2021-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":218345,"name":"Elizabeth W. Karlson","orcid":"0000-0001-5455-7443","position":1,"is_corresponding":false},{"id":525344,"name":"Jonathan Jackson","orcid":"0000-0002-3175-4898","position":2,"is_corresponding":false},{"id":802453,"name":"A. Hille","orcid":null,"position":3,"is_corresponding":false},{"id":802454,"name":"Cheryl McCloud","orcid":null,"position":4,"is_corresponding":false},{"id":802455,"name":"Meg Bor","orcid":null,"position":5,"is_corresponding":false},{"id":557822,"name":"Guohai Zhou","orcid":"0000-0002-8826-403X","position":6,"is_corresponding":false},{"id":294028,"name":"Cheryl R. Clark","orcid":"0000-0001-6782-6382","position":7,"is_corresponding":false},{"id":802055,"name":"Juliana M. Ison","orcid":"0000-0001-5824-9173","position":0,"is_corresponding":true}],"reference_count":10,"raw_metadata":null,"created_at":"2026-07-18T23:52:23.670339Z","pmid":"34295127","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}