{"doi":"10.1111/jgs.16442","title":"Racial and Ethnic Differences in Knowledge About One's Dementia Status","abstract":"OBJECTIVES: To examine racial and ethnic differences in knowledge about one's dementia status. DESIGN: Prospective cohort study. SETTING: The 2000 to 2014 Health and Retirement Study. PARTICIPANTS: Our sample included 8,686 person-wave observations representing 4,065 unique survey participants, aged 70 years or older, with dementia, as identified by a well-validated statistical prediction model based on individual demographic and clinical characteristics. MEASUREMENTS: Primary outcome measure was knowledge of one's dementia status, as reported in the survey. Patient characteristics included race/ethnicity, age, sex, survey year, cognition, function, comorbidity, and whether living in a nursing home. RESULTS: Among subjects identified as having dementia by the prediction model, 43.5% to 50.2%, depending on the survey year, reported that they were informed of the dementia status by their physician. This proportion was lower among Hispanics (25.9%-42.2%) and non-Hispanic blacks (31.4%-50.5%) than among non-Hispanic whites (47.7%-52.9%). Our fully adjusted regression model indicated lower dementia awareness among non-Hispanic blacks (odds ratio [OR] = 0.74; 95% confidence interval [CI] = 0.58-0.94) and Hispanics (OR = 0.60; 95% CI = 0.43-0.85), compared to non-Hispanic whites. Having more instrumental activity of daily living limitations (OR = 1.65; 95% CI = 1.56-1.75) and living in a nursing home (OR = 2.78; 95% CI = 2.32-3.32) were associated with increased odds of subjects reporting being told about dementia by a physician. CONCLUSION: Less than half of individuals with dementia reported being told by a physician about the condition. A higher proportion of non-Hispanic blacks and Hispanics with dementia may be unaware of their condition, despite higher dementia prevalence in these groups, compared to non-Hispanic whites. Dementia outreach programs should target diverse communities with disproportionately high disease prevalence and low awareness. J Am Geriatr Soc 68:1763-1770, 2020.","journal":"Journal of the American Geriatrics Society","year":2020,"id":67296,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":47,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.8161,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2020-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":356432,"name":"Joanna Emerson","orcid":"0000-0002-1199-582X","position":1,"is_corresponding":false},{"id":14653,"name":"Jessica D. Faul","orcid":"0000-0002-6969-6478","position":2,"is_corresponding":false},{"id":356433,"name":"Joshua T. Cohen","orcid":"0000-0003-1737-0991","position":3,"is_corresponding":false},{"id":356434,"name":"Peter J. Neumann","orcid":"0000-0003-1226-4073","position":4,"is_corresponding":false},{"id":263964,"name":"Howard Fillit","orcid":"0000-0002-3509-6706","position":5,"is_corresponding":false},{"id":357589,"name":"Allan T. Daly","orcid":null,"position":6,"is_corresponding":false},{"id":357590,"name":"Nikoletta M. Margaretos","orcid":null,"position":7,"is_corresponding":false},{"id":356435,"name":"Karen M. Freund","orcid":"0000-0002-9049-5574","position":8,"is_corresponding":false},{"id":356431,"name":"Pei‐Jung Lin","orcid":"0000-0001-6707-4619","position":0,"is_corresponding":true}],"reference_count":42,"raw_metadata":null,"created_at":"2026-07-18T21:15:12.020735Z","pmid":"32282058","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}