{"doi":"10.1111/ctr.14908","title":"Factors enabling transplant program participation in the Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective: A national survey","abstract":"BACKGROUND: The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant programs to register donor candidates while the SRTR conducts follow-up. METHODS: To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from October 26, 2021 to December 17, 2021. RESULTS: We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and eight liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN postdonation follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. CONCLUSION: This survey identifies potential targets to strengthen participation in the effort to create a national living donor registry in the United States. Collaboration and investment to overcome barriers to LDC participation among transplant programs are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant.","journal":"Clinical Transplantation","year":2023,"id":337910,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":17,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9503,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":372257,"name":"Mary Amanda Dew","orcid":"0000-0002-4666-1870","position":1,"is_corresponding":false},{"id":455635,"name":"Huiling Xiao","orcid":null,"position":2,"is_corresponding":false},{"id":1070336,"name":"Addie Wisniewski","orcid":null,"position":3,"is_corresponding":false},{"id":945232,"name":"Macey L. Levan","orcid":"0000-0002-4239-1252","position":4,"is_corresponding":false},{"id":429920,"name":"Fawaz Al Ammary","orcid":"0000-0003-0928-2860","position":5,"is_corresponding":false},{"id":320241,"name":"Asif Sharfuddin","orcid":"0000-0001-5488-1956","position":6,"is_corresponding":false},{"id":320242,"name":"David A. Axelrod","orcid":"0000-0001-5684-0613","position":7,"is_corresponding":false},{"id":419716,"name":"Amy D. Waterman","orcid":"0000-0002-7799-0060","position":8,"is_corresponding":false},{"id":303932,"name":"Bertram L. Kasiske","orcid":"0000-0003-4809-6956","position":9,"is_corresponding":false},{"id":270991,"name":"Krista L. Lentine","orcid":"0000-0002-9423-4849","position":0,"is_corresponding":true}],"reference_count":22,"raw_metadata":null,"created_at":"2026-07-19T01:10:31.133446Z","pmid":"36622257","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}