{"doi":"10.1111/bdi.13312","title":"Essential data dimensions for prospective international data collection in older age bipolar disorder (<scp>OABD</scp>): Recommendations from the <scp>GAGE‐BD</scp> group","abstract":"BACKGROUND: By 2030, over 50% of individuals living with bipolar disorder (BD) are expected to be aged ≥50 years. However, older age bipolar disorder (OABD) remains understudied. There are limited large-scale prospectively collected data organized in key dimensions capable of addressing several fundamental questions about BD affecting this subgroup of patients. METHODS: We developed initial recommendations for the essential dimensions for OABD data collection, based on (1) a systematic review of measures used in OABD studies, (2) a Delphi consensus of international OABD experts, (3) experience with harmonizing OABD data in the Global Aging & Geriatric Experiments in Bipolar Disorder Database (GAGE-BD, n ≥ 4500 participants), and (4) critical feedback from 34 global experts in geriatric mental health. RESULTS: We identified 15 key dimensions and variables within each that are relevant for the investigation of OABD: (1) demographics, (2) core symptoms of depression and (3) mania, (4) cognition screening and subjective cognitive function, (5) elements for BD diagnosis, (6) descriptors of course of illness, (7) treatment, (8) suicidality, (9) current medication, (10) psychiatric comorbidity, (11) psychotic symptoms, (12) general medical comorbidities, (13) functioning, (14) family history, and (15) other. We also recommend particular instruments for capturing some of the dimensions and variables. CONCLUSION: The essential data dimensions we present should be of use to guide future international data collection in OABD and clinical practice. In the longer term, we aim to establish a prospective consortium using this core set of dimensions and associated variables to answer research questions relevant to OABD.","journal":"Bipolar Disorders","year":2023,"id":359087,"datarank":0.3916873920194954,"base_score":2.3978952727983707,"endowment":2.3978952727983707,"self_citation_contribution":0.3596842909197557,"citation_network_contribution":0.03200310109973971,"self_endowment_contribution":0.3596842909197557,"citer_contribution":0.03200310109973971,"corpus_percentile":53.47721822541966,"corpus_rank":6015,"citation_count":10,"citer_count":4,"citers_with_citation_signal":2,"citers_with_endowment":2,"datacite_reuse_total":0,"is_dataset":true,"is_dataset_confidence":0.7053,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":0.0,"fair_percentile":0.0,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":276908,"name":"Soham Rej","orcid":"0000-0002-3908-9124","position":1,"is_corresponding":false},{"id":774137,"name":"Andrew T Olagunju","orcid":"0000-0003-1736-9886","position":2,"is_corresponding":false},{"id":3176,"name":"Antônio Lúcio Teixeira","orcid":"0000-0002-9621-5422","position":3,"is_corresponding":false},{"id":233775,"name":"Annemiek Dols","orcid":"0000-0003-1964-0318","position":4,"is_corresponding":false},{"id":235071,"name":"Martin Alda","orcid":"0000-0001-9544-3944","position":5,"is_corresponding":false},{"id":329498,"name":"Osvaldo P. Almeida","orcid":"0000-0002-8689-6199","position":6,"is_corresponding":false},{"id":1109736,"name":"Kürşat Altınbaş","orcid":"0000-0003-2899-0096","position":7,"is_corresponding":false},{"id":664492,"name":"Vicent Balanzá‐Martínez","orcid":"0000-0001-7772-7396","position":8,"is_corresponding":false},{"id":1054139,"name":"Izabela Guimarães Barbosa","orcid":"0000-0002-4480-0195","position":9,"is_corresponding":false},{"id":259224,"name":"Hilary P. Blumberg","orcid":"0000-0002-6363-4698","position":10,"is_corresponding":false},{"id":340297,"name":"Farren Briggs","orcid":"0000-0003-0903-1359","position":11,"is_corresponding":false},{"id":994468,"name":"Cynthia Calkin","orcid":"0000-0003-4673-3990","position":12,"is_corresponding":false},{"id":736176,"name":"Kristin A. Cassidy","orcid":"0000-0003-1407-816X","position":13,"is_corresponding":false},{"id":375393,"name":"Brent P. Forester","orcid":null,"position":14,"is_corresponding":false},{"id":889688,"name":"Orestes Vicente Forlenza","orcid":"0000-0002-6962-5899","position":15,"is_corresponding":false},{"id":109311,"name":"Tomáš Hájek","orcid":"0000-0003-0281-8458","position":16,"is_corresponding":false},{"id":1110170,"name":"Barthomeus C. M. Haarman","orcid":null,"position":17,"is_corresponding":false},{"id":285227,"name":"Esther Jiménez","orcid":"0000-0001-6929-6207","position":18,"is_corresponding":false},{"id":259232,"name":"Beny Lafer","orcid":"0000-0002-6132-9999","position":19,"is_corresponding":false},{"id":226870,"name":"Benoit H. Mulsant","orcid":"0000-0002-0303-6450","position":20,"is_corresponding":false},{"id":1109737,"name":"Stephen O. 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An author-gated dataset dies with the author's email address, and 'on reasonable request' has been shown repeatedly not to yield data.","anchors":["yes","partial","no"],"verdict":"no","current":0.0,"evidence":null,"why":"The paper does not mention any gatekeeper for sensitive data; data are not sensitive or no gatekeeper named. [majority verdict 'no' (3/5 passes agreed)]","gain":0.0,"priority":"useful","scored":false},{"key":"i_qualified_references","dimension":"I","label":"Identifiers for the resources the data depend on","action":"Cite by identifier every resource the data depend on — the source datasets' accessions, the reference build (GRCh38 / GCA_000001405.28), the cohort application number, the code DOI — and register those relations on the dataset record (IsDerivedFrom, IsSupplementTo). A name is not a link: it cannot be resolved, versioned, or followed by a machine.","anchors":["yes","partial","no"],"verdict":"no","current":0.0,"evidence":null,"why":"No identifier for an external resource is provided in the text.","gain":0.0,"priority":"useful","scored":false},{"key":"a_timeline_retention","dimension":"A","label":"Availability timing & retention","action":"State when the data become available AND how long they will be retained — cite the repository's preservation policy. NIH DMS Element 4 asks for both; most papers give neither.","anchors":["yes","partial","no"],"verdict":"no","current":0.0,"evidence":null,"why":"The paper states neither the timing nor the persistence of data availability.","gain":0.0,"priority":"useful","scored":false}],"suggestions":["Mint or cite a persistent identifier for the dataset — a repository DOI or an accession from a registered repository — and print it in the paper. A bare URL is not persistent: it is the single most common cause of a dead data link five years after publication.","Deposit the data in a repository registered in re3data/FAIRsharing (a domain repository such as GEO, SRA, dbGaP, PRIDE, or a generalist such as Zenodo, Dryad, Dataverse) and name it explicitly in the paper. A lab website is not an archive: it has no retention commitment and no accession.","Remove the precondition or justify it. Release the data at publication with no embargo, no registration wall, and no approval step — NIH's zero-embargo public- access rule (NOT-OD-25-101) has already made 'available at publication' the federal baseline for the article; the data should not lag behind it.","Attach a standard, machine-readable open licence to the deposit — CC0 or CC BY, which is what Horizon Europe and most funders expect — and print the licence identifier in the paper. 'Free to use' is not a licence: it grants nothing a reuser's institution can rely on.","Cite the dataset in the reference list like a publication — creator, year, title, repository, DOI/accession — and cite it in-text where it is used. Only a reference- list entry is machine-readable to Crossref/DataCite, and only a citation lets the data earn credit."],"model":"deepseek/deepseek-v4-flash","agent_version":"fair_agent_v8","fulltext_source":"unpaywall_pdf"},"fair_model":"deepseek/deepseek-v4-flash","fair_agent_version":"fair_agent_v8","fair_fulltext_source":"unpaywall_pdf","fair_has_llm":true,"fair_computed_at":"2026-07-20T12:26:06.430554Z","clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}