{"doi":"10.1093/pm/pnac167","title":"Evolving Attitudes Toward Numeric Pain Assessment Among Patients with Hypermobile Ehlers-Danlos Syndrome: A Qualitative Interview Study","abstract":"Dear Editor, Hypermobile Ehlers-Danlos Syndrome (hEDS) is the most common of the 13 types of Ehlers-Danlos syndrome [1]. Among its primary features are joint hypermobility, fatigue, and chronic pain. There is still no known genotype associated with hEDS, meaning that clinicians must rely on a rigid set of clinical criteria to make an accurate diagnosis [2]. These criteria include self-reported chronic pain, which makes the assessment of pain central not only to the experience of hEDS but also to its diagnosis. However, the elicitation of pain scores is irreducibly subjective and private. Thus, an understanding of the beliefs and practices of patients in quantifying their pain is essential to the successful management of hEDS and other conditions characterized by chronic pain. The 11-point numeric rating scale (NRS) is the instrument most commonly used to determine patients’ perceptions of their pain. Clinicians ask patients to rate their pain on a scale of 0 (no pain) to 10 (the worst pain imaginable). On the basis of this self-report and a physical examination, clinicians take actions to moderate patients’ pain. The NRS is also subsequently used to evaluate the success of those pain management techniques in follow-up appointments.","journal":"Pain Medicine","year":2022,"id":274597,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":10,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9597,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2022-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":2134,"name":"Kurt Kroenke","orcid":"0000-0002-0114-4669","position":1,"is_corresponding":false},{"id":943144,"name":"Heather L. Penwell","orcid":"0000-0001-7689-0474","position":2,"is_corresponding":false},{"id":283909,"name":"Clair A. Francomano","orcid":"0000-0002-4032-7425","position":3,"is_corresponding":false},{"id":368921,"name":"Colin Halverson","orcid":"0000-0002-4205-7860","position":0,"is_corresponding":true}],"reference_count":10,"raw_metadata":null,"created_at":"2026-07-19T00:28:12.324621Z","pmid":"36322007","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}