{"doi":"10.1093/jpepsy/jsae027","title":"Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD)","abstract":"OBJECTIVE: Illness intrusiveness refers to the subjective cognitive appraisal of a chronic health condition interfering in daily, valued activities and may be highly relevant for parents of children with atypical genital appearance due to differences of sex development (DSD). However, a measure of illness intrusiveness has not been validated for this population. The current study aimed to evaluate the factor structure of the Illness Intrusiveness Scale for Parents (IIS-P) and examine convergent validity. METHODS: Participants included 102 parents (Mage = 33.39 years, SD = 6.48; 58% mothers) of 65 children (<2 years old) diagnosed with DSD participating in a larger, longitudinal study. Parents completed the IIS-P as well as self-report measures of stigma, and anxious and depressive symptoms. An exploratory factor analysis (EFA) was conducted. RESULTS: EFA results supported a 1-factor intrusiveness solution (α = .93), as well as a 2-factor solution measuring intrusiveness on daily living (α = .92) and community connectedness (α = .85). The 1-factor solution and both factors of the 2-factor solution demonstrated significant convergent validity with stigma as well as anxious and depressive symptoms. CONCLUSIONS: Support emerged for both 1- and 2-factor solutions of the IIS-P in parents of children with DSD. The decision to evaluate illness intrusiveness as a total score or to examine the subscales of daily living and community connectedness should be tailored to the unique aims of researchers and clinicians. Future research should conduct a confirmatory factor analysis with both 1- and 2-factor models with larger, more diverse samples of caregivers.","journal":"Journal of Pediatric Psychology","year":2024,"id":479849,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":1,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9567,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2024-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":723486,"name":"Rachel S. Fisher","orcid":"0000-0002-7128-9871","position":1,"is_corresponding":false},{"id":542203,"name":"Katherine A. Traino","orcid":null,"position":2,"is_corresponding":false},{"id":714232,"name":"Nathan L Basile","orcid":"0000-0001-7944-2087","position":3,"is_corresponding":false},{"id":675960,"name":"Cindy Buchanan","orcid":null,"position":4,"is_corresponding":false},{"id":497784,"name":"Earl Y. Cheng","orcid":"0000-0002-0799-1738","position":5,"is_corresponding":false},{"id":500341,"name":"Dix P. Poppas","orcid":null,"position":6,"is_corresponding":false},{"id":1318873,"name":"Amanda N. Baraldi","orcid":"0000-0003-1978-4768","position":7,"is_corresponding":false},{"id":497792,"name":"Amy B. Wisniewski","orcid":"0000-0001-7286-1895","position":8,"is_corresponding":false},{"id":497793,"name":"Larry L. Mullins","orcid":"0000-0002-0274-2687","position":9,"is_corresponding":false},{"id":1156847,"name":"Alexandra M DeLone","orcid":"0000-0001-7962-7970","position":0,"is_corresponding":true}],"reference_count":42,"raw_metadata":null,"created_at":"2026-07-19T02:06:54.284166Z","pmid":"38578612","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}