{"doi":"10.1093/jamia/ocab088","title":"Informatics-enabled citizen science to advance health equity","abstract":"The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.","journal":"Journal of the American Medical Informatics Association","year":2021,"id":426,"datarank":0.32958368660043297,"base_score":2.1972245773362196,"endowment":2.1972245773362196,"self_citation_contribution":0.32958368660043297,"citation_network_contribution":0.0,"self_endowment_contribution":0.32958368660043297,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":8,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.0467,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2021-06-21","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":3949,"name":"Don E. Detmer","orcid":null,"position":1,"is_corresponding":false},{"id":3950,"name":"Katherine K Kim","orcid":"0000-0001-5766-3938","position":3,"is_corresponding":false},{"id":3951,"name":"Robin Austin","orcid":"0000-0003-1993-4623","position":4,"is_corresponding":false},{"id":3952,"name":"Anna McCollister","orcid":null,"position":5,"is_corresponding":false},{"id":3953,"name":"Courtney C. Rogers","orcid":"0000-0001-6254-6728","position":6,"is_corresponding":false},{"id":3954,"name":"Karen C Waters-Wicks","orcid":null,"position":7,"is_corresponding":false},{"id":125,"name":"Philip  E. Bourne","orcid":"0000-0002-7618-7292","position":8,"is_corresponding":false},{"id":3948,"name":"Rupa S. Valdez","orcid":"0000-0002-5125-0793","position":0,"is_corresponding":true}],"reference_count":28,"raw_metadata":null,"created_at":"2026-03-01T18:20:47.508186Z","pmid":null,"pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}