{"doi":"10.1093/ibd/izad056","title":"Profiles of Web-based Portal Users with Inflammatory Bowel Disease","abstract":"BACKGROUND: Web-based portals can enhance communication between patients and providers to support IBD self-management and improve care. We aimed to identify portal use patterns of patients with inflammatory bowel disease (IBD) to inform future web portal-based interventions and portal design. METHODS: Patients with IBD receiving care at the University of Michigan between 2012 and 2021 were identified. Meta-data from electronic logs of each patient's most recent year of portal use were abstracted. Portal engagement was characterized in terms of intensity (ie, frequency of use); comprehensiveness (ie, number of portal functions used); and duration (ie, quarters per year of portal use). We used k-means clustering, a machine-learning technique, to identify groupings of portal users defined in terms of engagement features. RESULTS: We found 5605 patients with IBD who had accessed their portal account at least once. The average age was 41.2 years (SD 16.7), 3035 (54.2%) were female, and 2214 (39.5%) received immune-targeted therapies. We identified 3 patterns of portal engagement: (1) low intensity users (29.5%); (2) moderate intensity, comprehensive, and sustained users (63.3%); and (3) high intensity, comprehensive, sustained users (7.2%). Patients with more intense, comprehensive, and sustained use of the portal were older, female, with more comorbidities, and were more likely to receive immune-targeted therapies. CONCLUSION: Understanding distinct patterns of portal use can inform portal-based interventions and portal design. Patient portals may be particularly helpful in delivering assistance to those with comorbidities and those receiving immune-targeted therapies-many of whom demonstrate more intense, comprehensive, and sustained portal use.","journal":"Inflammatory Bowel Diseases","year":2023,"id":330712,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":8,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.7931,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":233088,"name":"Kira L. Newman","orcid":"0000-0002-8279-1111","position":1,"is_corresponding":false},{"id":395812,"name":"Peter Higgins","orcid":"0000-0003-1602-4341","position":2,"is_corresponding":false},{"id":342036,"name":"John D. Piette","orcid":"0000-0002-7241-2798","position":3,"is_corresponding":false},{"id":418166,"name":"Ken Resnicow","orcid":"0000-0003-1416-9627","position":4,"is_corresponding":false},{"id":348126,"name":"Jeremy Louissaint","orcid":"0000-0003-1154-1825","position":5,"is_corresponding":false},{"id":502435,"name":"Brooke Kenney","orcid":null,"position":6,"is_corresponding":false},{"id":454416,"name":"Jeffrey Berinstein","orcid":"0000-0001-7631-9665","position":7,"is_corresponding":false},{"id":248982,"name":"Akbar K. Waljee","orcid":"0000-0003-1964-8790","position":8,"is_corresponding":false},{"id":395729,"name":"Ji Zhu","orcid":"0000-0001-7134-9419","position":9,"is_corresponding":false},{"id":413781,"name":"Shirley Cohen‐Mekelburg","orcid":"0000-0001-5058-5527","position":10,"is_corresponding":false},{"id":455605,"name":"Mohamed Noureldin","orcid":null,"position":0,"is_corresponding":true}],"reference_count":29,"raw_metadata":null,"created_at":"2026-07-19T01:09:14.691473Z","pmid":"37071851","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}