{"doi":"10.1093/aje/kwad035","title":"Design and Implementation of the All of Us Research Program COVID-19 Participant Experience (COPE) Survey","abstract":"In response to the rapidly evolving coronavirus disease 2019 (COVID-19) pandemic, the All of Us Research Program longitudinal cohort study developed the COVID-19 Participant Experience (COPE) survey to better understand the pandemic experiences and health impacts of COVID-19 on diverse populations within the United States. Six survey versions were deployed between May 2020 and March 2021, covering mental health, loneliness, activity, substance use, and discrimination, as well as COVID-19 symptoms, testing, treatment, and vaccination. A total of 104,910 All of Us Research Program participants, of whom over 73% were from communities traditionally underrepresented in biomedical research, completed 275,201 surveys; 9,693 completed all 6 surveys. Response rates varied widely among demographic groups and were lower among participants from certain racial and ethnic minority populations, participants with low income or educational attainment, and participants with a Spanish language preference. Survey modifications improved participant response rates between the first and last surveys (13.9% to 16.1%, P < 0.001). This paper describes a data set with longitudinal COVID-19 survey data in a large, diverse population that will enable researchers to address important questions related to the pandemic, a data set that is of additional scientific value when combined with the program's other data sources.","journal":"American Journal of Epidemiology","year":2023,"id":334331,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":21,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.6191,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":272489,"name":"Tamara R. Litwin","orcid":"0000-0003-2130-6263","position":1,"is_corresponding":false},{"id":1063202,"name":"Genevieve Ellsworth","orcid":null,"position":2,"is_corresponding":false},{"id":1063203,"name":"Heather Sansbury","orcid":null,"position":3,"is_corresponding":false},{"id":251008,"name":"Brian K. Ahmedani","orcid":"0000-0003-4291-4516","position":4,"is_corresponding":false},{"id":399403,"name":"Karmel W. Choi","orcid":"0000-0002-3914-2431","position":5,"is_corresponding":false},{"id":237386,"name":"Robert M. Cronin","orcid":"0000-0003-1916-6521","position":6,"is_corresponding":false},{"id":1063204,"name":"Yasmin Kloth","orcid":null,"position":7,"is_corresponding":false},{"id":1063205,"name":"Alan Ashbeck","orcid":null,"position":8,"is_corresponding":false},{"id":337690,"name":"Scott Sutherland","orcid":"0009-0009-0867-0854","position":9,"is_corresponding":false},{"id":237382,"name":"Brandy Mapes","orcid":"0000-0001-6365-347X","position":10,"is_corresponding":false},{"id":706284,"name":"Mark Begale","orcid":"0000-0002-3598-4498","position":11,"is_corresponding":false},{"id":1063206,"name":"Geeta Bhat","orcid":null,"position":12,"is_corresponding":false},{"id":722494,"name":"Paula King","orcid":null,"position":13,"is_corresponding":false},{"id":842137,"name":"Kayla Marginean","orcid":"0000-0001-7071-9895","position":14,"is_corresponding":false},{"id":1063207,"name":"Keri Ann Wolfe","orcid":null,"position":15,"is_corresponding":false},{"id":675942,"name":"Aymone Kouame","orcid":null,"position":16,"is_corresponding":false},{"id":1063208,"name":"Carmina Raquel","orcid":null,"position":17,"is_corresponding":false},{"id":556654,"name":"Francis Ratsimbazafy","orcid":null,"position":18,"is_corresponding":false},{"id":1063209,"name":"Zach Bornemeier","orcid":null,"position":19,"is_corresponding":false},{"id":1063210,"name":"Kyle Neumeier","orcid":null,"position":20,"is_corresponding":false},{"id":918888,"name":"Rubin Baskir","orcid":null,"position":21,"is_corresponding":false},{"id":311291,"name":"Kelly A. Gebo","orcid":"0000-0003-4010-398X","position":22,"is_corresponding":false},{"id":22022,"name":"Joshua C. Denny","orcid":"0000-0002-3049-7332","position":23,"is_corresponding":false},{"id":104618,"name":"Jordan W. Smoller","orcid":"0000-0002-0381-6334","position":24,"is_corresponding":false},{"id":918231,"name":"Holly A. Garriock","orcid":"0000-0002-0629-5917","position":25,"is_corresponding":false},{"id":793382,"name":"Claire E. Schulkey","orcid":"0000-0003-1600-3102","position":0,"is_corresponding":true}],"reference_count":26,"raw_metadata":null,"created_at":"2026-07-19T01:09:48.843291Z","pmid":"36799620","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}