{"doi":"10.1016/j.pecinn.2023.100213","title":"An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease","abstract":"Objective: To provide an overview of the development of the Preparing Heart and Mind™ (PHM™) care program designed for parents with a prenatal diagnosis of critical congenital heart disease (CCHD) and describe issues of parental concern, caregiving competencies, and type and timing of PHM™ topics. Methods: Guided participation theory underpinned intervention development and a mixed methods pilot of a novel, nurse-guided mHealth intervention. Parents were enrolled from the third trimester of pregnancy-12 weeks postnatally. Online surveys, session transcripts, and app use were descriptively analyzed. Results: The sample included 19 mothers/birthing persons and 15 caregiving partners randomized to the intervention group. In 49 sessions, mental health/wellbeing (94%) and condition-specific information (86%) were top issues. Many caregiving competencies were developed, with mothers/birthing persons often focused on feeding (86%). Regulating emotions and co-parenting consistently needed support. PHM™ topics of preparing for hospitalization (47%) and handling uncertainty (45%) were most discussed. Two cases further characterize findings. Conclusion: Nurse-parent collaborative understanding of issues emphasized the need for mental health assessments. Prenatal intervention opportunities were underscored through discussions of caregiving issues and PHM™ topics. Innovation: PHM™ represents an innovative approach that holds promise for supporting parents' mental health and caregiving needs outside the healthcare setting.","journal":"PEC Innovation","year":2023,"id":370347,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":7,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9562,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":974796,"name":"Kristin M. Elgersma","orcid":"0000-0001-6559-0812","position":1,"is_corresponding":false},{"id":1097089,"name":"Taylor Iwaszko Wagner","orcid":"0000-0003-0079-6283","position":2,"is_corresponding":false},{"id":1097534,"name":"Anna Trebilcock","orcid":null,"position":3,"is_corresponding":false},{"id":1129822,"name":"Jenna Damico","orcid":null,"position":4,"is_corresponding":false},{"id":1129823,"name":"Alejandra Sosa","orcid":null,"position":5,"is_corresponding":false},{"id":703650,"name":"Matthew Ambrose","orcid":"0000-0001-9419-2469","position":6,"is_corresponding":false},{"id":1079855,"name":"Kavisha Shah","orcid":"0000-0002-7770-8790","position":7,"is_corresponding":false},{"id":1097533,"name":"Aura A. Sanchez Mejia","orcid":null,"position":8,"is_corresponding":false},{"id":594931,"name":"Karen F. Pridham","orcid":"0000-0001-5919-7635","position":9,"is_corresponding":false},{"id":594932,"name":"Anne Chevalier McKechnie","orcid":"0000-0002-1210-3379","position":0,"is_corresponding":true}],"reference_count":60,"raw_metadata":null,"created_at":"2026-07-19T01:15:37.094100Z","pmid":"37771461","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}