{"doi":"10.1016/j.msard.2024.105501","title":"Defining a standard set of health outcomes for patients with relapsing-remitting multiple sclerosis","abstract":null,"journal":"Multiple Sclerosis and Related Disorders","year":2024,"id":610352,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":0,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":null,"is_data_producer":false,"deposit_databanks":null,"is_oa":false,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":null,"fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":1569244,"name":"Pedro Carrascal Rueda","orcid":null,"position":1,"is_corresponding":false},{"id":1569245,"name":"Olga Delgado Sánchez","orcid":null,"position":2,"is_corresponding":false},{"id":1569246,"name":"Mónica Borges Guerra","orcid":null,"position":3,"is_corresponding":false},{"id":1569247,"name":"Alfredo Rodríguez Antigüedad","orcid":null,"position":4,"is_corresponding":false},{"id":1569248,"name":"Alberto Morell Baladrón","orcid":null,"position":5,"is_corresponding":false},{"id":1569249,"name":"Noelia Becerril Ríos","orcid":null,"position":6,"is_corresponding":false},{"id":314590,"name":"Àlex Rovira","orcid":"0000-0002-2132-6750","position":7,"is_corresponding":false},{"id":1569254,"name":"Virgina Meca Lallana","orcid":null,"position":8,"is_corresponding":false},{"id":1569257,"name":"Laura Benedito-Palos","orcid":"0000-0003-4726-4196","position":9,"is_corresponding":false},{"id":1569260,"name":"Marta Comellas","orcid":null,"position":10,"is_corresponding":false},{"id":1569263,"name":"David Vilanova","orcid":null,"position":11,"is_corresponding":false},{"id":1569264,"name":"Ainara Echeto","orcid":null,"position":12,"is_corresponding":false},{"id":1569266,"name":"Xavier Pérez","orcid":null,"position":13,"is_corresponding":false},{"id":1215693,"name":"Celia Oreja‐Guevara","orcid":"0000-0002-9221-5716","position":14,"is_corresponding":false},{"id":1569243,"name":"Miguel Llaneza González","orcid":null,"position":0,"is_corresponding":false}],"reference_count":0,"raw_metadata":{"has_enrichment":true,"resolved":true,"title":"Defining a standard set of health outcomes for patients with relapsing-remitting multiple sclerosis","abstract":"BACKGROUND: Standardizing health outcomes is challenging in clinical management, but it also holds the potential for creating a healthcare system that is both more effective and efficient. The aim of the present study is to define a standardized set of health outcomes for managing Relapsing-Remitting Multiple Sclerosis (RRMS). METHODS: The project was led and coordinated by a multidisciplinary scientific committee (SC), which included a literature review, a patient-focused group, three nominal group meetings, and two SC meetings. RESULTS: 36 outcome variables were included in the standard set: 24 clinical (including weight, smoking habit, comorbidities, disability, mobility, diagnosis of secondary progressive multiple sclerosis, relapsed-related variables, radiological variables, cognitive status and disease-related symptoms), nine treatment-related (pharmacological and non-pharmacological information), and 3 related to the impact of RRMS on the patient's life (quality of life, pregnancy desire, work-related difficulties). In addition, experts also agreed to collect 10 case-mix variables that may affect but cannot be controlled as part of the management of the condition: 4 sociodemographic (age, sex, race, and employment status) and 6 clinical (height, date of diagnosis and first episode, serological status, early symptoms, and number of relapses pre-diagnosis). CONCLUSION: The information provided through the present standard set of outcome variables can improve the management of RRMS and promote patient-centred quality care.","is_dataset_classified":null,"base_score":0.0,"endowment":0.0,"datacite_reuse_total":0,"file_count":0,"downloads":0,"views":0,"has_version_chain":false,"is_dataset":false,"is_oa":false,"pmid":"38401203","pmcid":null,"openalex_id":"https://openalex.org/W4391787418","authors":[],"funders":[],"total_grants":0,"fwci":0.0,"citation_percentile":0.02251656,"influential_citations":0,"citation_trend":[],"oa_status":"hybrid","license":"cc-by","oa_locations":[{"url":"http://www.msard-journal.com/article/S2211034824000804/pdf","host_type":"journal"},{"url":"http://www.msard-journal.com/article/S2211034824000804/pdf","host_type":"publisher"},{"url":"https://api.elsevier.com/content/article/PII:S2211034824000804?httpAccept=text/xml","host_type":"publisher"},{"url":"https://api.elsevier.com/content/article/PII:S2211034824000804?httpAccept=text/plain","host_type":"publisher"},{"url":"https://doi.org/10.1016/j.msard.2024.105501","host_type":"journal"},{"url":"https://pubmed.ncbi.nlm.nih.gov/38401203","host_type":"repository"}],"fields_of_study":["Multiple Sclerosis Research Studies","Biological Research and Disease Studies","Diphtheria, Corynebacterium, and Tetanus","Humans","Multiple Sclerosis, Relapsing-Remitting","Multiple Sclerosis","Quality of Life","Multiple Sclerosis, Chronic Progressive","Outcome Assessment, Health Care"],"mesh_terms":["Humans","Multiple Sclerosis","Quality of Life","Outcome Assessment, Health Care","Multiple Sclerosis, Chronic Progressive","Multiple Sclerosis, Relapsing-Remitting"],"keywords":["Medicine","Multiple sclerosis","Quality of life (healthcare)","Affect (linguistics)","Disease","Set (abstract data type)","Health care","Physical therapy","Family medicine","Pediatrics","Psychiatry","Internal medicine","Nursing","Psychology","Quality of life","Patient-centred Care","Patient-reported Outcomes","Relapsing-remitting Multiple Sclerosis","Outcome Measurement","Patient Centricity"],"sdg_mappings":[],"linked_datasets":[],"clinical_trials":[],"software_tools":[],"database_accessions":[],"source":"live","citation_network_status":"fetched"},"created_at":"2026-07-31T21:31:30.257027Z","pmid":null,"pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}