{"doi":"10.1016/j.ijcchd.2023.100447","title":"Definitions of resilience and resilience resource use as described by adults with congenital heart disease","abstract":"Background: Adult congenital heart disease (ACHD) is a lifelong illness that presents ongoing challenges to quality of life. Fostering personal resilience resources to sustain well-being can enhance patients' psychosocial health. Objective: We aimed to describe patients' resilience experiences: how they understand, develop, and utilize resilience resources in managing ACHD. Methods: We conducted a qualitative study of patients with ACHD. Participants were recruited using maximum variation sampling. Individual, semi-structured interviews were conducted June 2020 to August 2021. We queried approaches to managing ACHD-related stress and experiences with resilience and analyzed responses with thematic analysis. Results: Participant (N = 25) median age was 32 years (range 22-44); 52% identified as female and 72% non-Hispanic white. Participants' anatomic ACHD was moderate (56%) or complex (44%); physiologically, 76% were functional class C or D. Participants described various resilience resources, which map to an established resilience framework: 1) internal resources: maintaining positivity, self-directed activity, and setting goals; 2) external resources: social support; 3) existential resources: purpose, gratitude, and cultivating health. Even among participants who reported feeling unfamiliar (8/25) with the term \"resilience,\" all participants shared experiences reflecting resilience developed while living with ACHD. Conclusion: ACHD-relevant resilience resources may help patients and clinicians navigate ACHD-related stress and promote psychosocial well-being.","journal":"International Journal of Cardiology Congenital Heart Disease","year":2023,"id":344024,"datarank":0.4850345591574894,"base_score":2.639057329615259,"endowment":2.639057329615259,"self_citation_contribution":0.3958585994422889,"citation_network_contribution":0.08917595971520045,"self_endowment_contribution":0.3958585994422889,"citer_contribution":0.08917595971520045,"corpus_percentile":null,"corpus_rank":null,"citation_count":13,"citer_count":10,"citers_with_citation_signal":6,"citers_with_endowment":6,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9142,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":758271,"name":"Erin Abu‐Rish Blakeney","orcid":"0000-0002-4902-181X","position":1,"is_corresponding":false},{"id":1082018,"name":"Andrea Corage Baden","orcid":"0000-0002-4304-3372","position":2,"is_corresponding":false},{"id":1082403,"name":"Vea Freeman","orcid":null,"position":3,"is_corresponding":false},{"id":247416,"name":"Joyce P. Yi‐Frazier","orcid":"0000-0002-7057-7249","position":4,"is_corresponding":false},{"id":373822,"name":"J. Randall Curtis","orcid":"0000-0001-9529-845X","position":5,"is_corresponding":false},{"id":394313,"name":"Ruth A. Engelberg","orcid":null,"position":6,"is_corresponding":false},{"id":247418,"name":"Abby R. Rosenberg","orcid":"0000-0002-7608-607X","position":7,"is_corresponding":false},{"id":393447,"name":"Jill M. Steiner","orcid":"0000-0001-6372-1356","position":0,"is_corresponding":true}],"reference_count":41,"raw_metadata":{"citation_network_status":"fetched"},"created_at":"2026-07-19T01:11:26.556051Z","pmid":"37693226","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}