{"doi":"10.1016/j.gimo.2024.101821","title":"Informal prenatal genetic screening education: What can you learn from Google and YouTube?","abstract":"Introduction: The goal of this paper is to explore what online education and decision support tools are freely available to patients about prenatal screening. Materials and Methods: We 1) conducted an environmental scan using Google Trends to identify and evaluate prenatal screening search terms, 2) created a list of websites and YouTube videos that would be easily accessed by a searcher and 3) characterized the information within those websites and videos, including an examination of their qualities as a decision support tool and a readability analysis. Results: Fifty websites, containing 62 unique educational resources, and 39 YouTube videos were analyzed. The websites were primarily educational, though the education was provided by a range of sources including non-profit and for-profit organizations, universities, and governments (i.e., public health departments). Readability scores (PEMAT-P) for the sites ranged from 50% to 92%, with a median score of 74%. Two of the websites we evaluated met all of the limited decision support standards we applied; four of the websites included patient stories or experiences and eight included some element of values clarification. Videos were more likely to include values clarification. Discussion: The information available to patients online is variable. While most is balanced and informative, much is difficult to read and missing key decision-making factors. Healthcare providers should work with patients to ensure they have basic comprehension of the prenatal genetic screening materials, possible result outcomes, and expected steps following a positive screening result.","journal":"Genetics in Medicine Open","year":2024,"id":451306,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":3,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.952,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2024-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":883531,"name":"Naomi O. Riches","orcid":"0000-0001-9815-6932","position":1,"is_corresponding":false},{"id":1164265,"name":"Marwa W. Aljardali","orcid":"0000-0001-5779-3839","position":2,"is_corresponding":false},{"id":1272778,"name":"Penelope Nussbaum","orcid":null,"position":3,"is_corresponding":false},{"id":1272779,"name":"Evelyn Dean‐Olmsted","orcid":null,"position":4,"is_corresponding":false},{"id":312504,"name":"Erin Rothwell","orcid":"0000-0002-2294-2299","position":5,"is_corresponding":false},{"id":741903,"name":"Erin Johnson","orcid":"0000-0003-1150-1823","position":0,"is_corresponding":true}],"reference_count":42,"raw_metadata":null,"created_at":"2026-07-19T02:02:41.417944Z","pmid":"39606013","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}