{"doi":"10.1007/s10561-012-9303-7","title":"Consenting to donation: an examination of current practices in informed consent for tissue donation in the US","abstract":null,"journal":"Cell and Tissue Banking","year":2013,"id":636501,"datarank":0.41588830833596724,"base_score":2.772588722239781,"endowment":2.772588722239781,"self_citation_contribution":0.41588830833596724,"citation_network_contribution":0.0,"self_endowment_contribution":0.41588830833596724,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":15,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":null,"is_data_producer":false,"deposit_databanks":null,"is_oa":false,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":null,"fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":32874,"name":"Heather M. Traino","orcid":null,"position":1,"is_corresponding":false},{"id":29372,"name":"Laura A. Siminoff","orcid":"0000-0002-6775-665X","position":0,"is_corresponding":false}],"reference_count":0,"raw_metadata":{"has_enrichment":true,"resolved":true,"title":"Consenting to donation: an examination of current practices in informed consent for tissue donation in the US","abstract":"Informed consent is the primary moral principle guiding the donation of human tissue for transplant purposes. When patients' donation wishes are not known, family members making the decision about tissue donation should be provided with requisite information needed to make informed donation decisions. Using a unique dataset of 1,016 audiotaped requests for tissue obtained from 15 US tissue banking organizations, we examined whether the information provided to families considering tissue donation met current standards for informed consent. The results indicated that many elements of informed consent were missing from the donation discussions, including the timeframe for procurement, autopsy issues, the involvement of both for-profit and nonprofit organizations, and the processing, storage and distribution of donated tissue. A multiple linear regression analysis also revealed that nonwhites and family members of increased age received less information regarding tissue donation than did younger, white decision makers. Recommendations for improving the practice of obtaining consent to tissue donation are provided.","is_dataset_classified":null,"base_score":2.772588722239781,"endowment":2.772588722239781,"datacite_reuse_total":0,"file_count":0,"downloads":0,"views":0,"has_version_chain":false,"is_dataset":false,"is_oa":false,"pmid":"22395736","pmcid":"PMC3568202","openalex_id":"https://openalex.org/W2034112226","authors":[],"funders":[{"funder_name":"AHRQ HHS","grant_id":"R01 HS013152","title":null},{"funder_name":"AHRQ HHS","grant_id":"R01 HS-13152","title":null},{"funder_name":"National Institutes of Health","grant_id":"7R01HS013152-05","title":"Understanding Consent to Tissue Donation"}],"total_grants":3,"fwci":0.9213,"citation_percentile":0.78152205,"influential_citations":0,"citation_trend":[{"year":2013,"count":2},{"year":2015,"count":1},{"year":2016,"count":3},{"year":2017,"count":2},{"year":2020,"count":1},{"year":2022,"count":2},{"year":2023,"count":2},{"year":2024,"count":1},{"year":2026,"count":1}],"oa_status":"green","license":"Springer TDM","oa_locations":[{"url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3568202","host_type":"repository"},{"url":"https://www.ncbi.nlm.nih.gov/pmc/articles/3568202","host_type":"repository"},{"url":"http://link.springer.com/content/pdf/10.1007/s10561-012-9303-7.pdf","host_type":"publisher"},{"url":"http://link.springer.com/article/10.1007/s10561-012-9303-7/fulltext.html","host_type":"publisher"},{"url":"http://link.springer.com/content/pdf/10.1007/s10561-012-9303-7","host_type":"publisher"},{"url":"https://doi.org/10.1007/s10561-012-9303-7","host_type":"journal"},{"url":"https://pubmed.ncbi.nlm.nih.gov/22395736","host_type":"repository"},{"url":"http://europepmc.org/articles/PMC3568202","host_type":"repository"},{"url":"https://europepmc.org/articles/pmc3568202?pdf=render","host_type":""},{"url":"https://dx.doi.org/10.1007/s10561-012-9303-7","host_type":""}],"fields_of_study":["Organ Donation and Transplantation","Ethics in medical practice","Ethics in Clinical Research","03 medical and health sciences","0302 clinical medicine","Adult","Demography","Female","Humans","Informed Consent","Male","Regression Analysis","Tissue and Organ Procurement","United States","United States Office of Research Integrity"],"mesh_terms":["Adult","Demography","Female","Humans","Informed Consent","Male","Tissue and Organ Procurement","Regression Analysis","United States","United States Office of Research Integrity"],"keywords":["Tissue Donation","Donation","Informed consent","Tissue bank","Organ donation","Procurement","Biobank","Medicine","Family medicine","Psychology","Business","Transplantation","Surgery","Law","Political science","Marketing","Pathology","Bioinformatics","Alternative medicine","Adult","Male","Tissue and Organ Procurement","United States Office of Research Integrity","Humans","Regression Analysis","Female","United States","Demography"],"sdg_mappings":[{"sdg_number":3,"sdg_label":"3. 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