{"doi":"10.1002/lt.26088","title":"What Survivorship Means to Liver Transplant Recipients: Qualitative Groundwork for a Survivorship Conceptual Model","abstract":"Survivorship is a well-established concept in the cancer care continuum with a focus on disease recurrence, quality of life, and the minimization of competing risks for mortality; however, survivorship has not been well studied in liver transplantation (LT). We investigated what survivorship means to LT patients and identified motivations and coping strategies for overcoming challenges after LT. A total of 20 in-depth home interviews were conducted among adults 3 to 6 months after LT. Interviews were conducted by trained qualitative research experts and coded and analyzed using an inductive approach. A majority of LT recipients (75%) identified themselves as survivors. Integral to the definition of survivorship was overcoming hardship (including experiences on the waiting list) and the unique experience of being given a \"second chance\" at life. Motivations to survive included a new chance at life (55%), family (40%), spirituality/faith (30%), and fear of rejection (15%). LT recipients and caregivers identified multiple strategies to cope with post-LT challenges, including relying on a large network of community, spiritual, and virtual support. These findings informed a conceptual model of LT survivorship based on socioecological theory, which identified the following variables influencing survivorship: (1) pretransplant experiences, (2) individual attributes and challenges, (3) interpersonal relationships with caregivers and other social support, (4) community relationships, and (5) large-scale factors including neighborhood and financial issues. LT recipients identified themselves as survivors, and post-LT identities were greatly influenced by pre-LT experiences. These perspectives informed an in-depth conceptual model of survivorship after transplantation. We identified sources of motivation and coping strategies used in LT recovery that could be targets of survivorship interventions aimed at improving post-LT outcomes.","journal":"Liver Transplantation","year":2021,"id":179400,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":18,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9541,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2021-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":369757,"name":"Hannah P. Kim","orcid":"0000-0001-5518-452X","position":1,"is_corresponding":false},{"id":709718,"name":"Luke Baldelli","orcid":"0000-0002-0066-243X","position":2,"is_corresponding":false},{"id":521283,"name":"Rebekah P. Nash","orcid":null,"position":3,"is_corresponding":false},{"id":593813,"name":"Randall Teal","orcid":null,"position":4,"is_corresponding":false},{"id":710602,"name":"Gabrielle Magee","orcid":null,"position":5,"is_corresponding":false},{"id":369759,"name":"Marci M. Loiselle","orcid":"0000-0002-7284-6342","position":6,"is_corresponding":false},{"id":351290,"name":"Chirag S. Desai","orcid":"0000-0002-3784-0973","position":7,"is_corresponding":false},{"id":317122,"name":"Simon J. Craddock Lee","orcid":"0000-0001-6345-1237","position":8,"is_corresponding":false},{"id":106840,"name":"Amit G. Singal","orcid":"0000-0002-1172-3971","position":9,"is_corresponding":false},{"id":228880,"name":"Jorge A. Marrero","orcid":"0000-0001-9604-5454","position":10,"is_corresponding":false},{"id":226670,"name":"A. Sidney Barritt","orcid":"0000-0002-4200-3256","position":11,"is_corresponding":false},{"id":369761,"name":"Donna M. Evon","orcid":"0000-0002-1414-1846","position":12,"is_corresponding":false},{"id":353599,"name":"Sarah R. Lieber","orcid":"0000-0001-8304-4479","position":0,"is_corresponding":true}],"reference_count":36,"raw_metadata":null,"created_at":"2026-07-18T23:47:48.974996Z","pmid":"33942480","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}