{"doi":"10.1002/alz.13126","title":"How intention to join an Alzheimer's participant recruitment registry differs by race, ethnicity, sex, and family history: Results from a national survey of US adults","abstract":"INTRODUCTION: Alzheimer's-focused participant recruitment registries are tools for accelerating enrollment into studies, however, registry members are primarily White women. METHODS: We conducted a national online survey of 1501 adults ages 50-80, oversampling for Black and Hispanic/Latino respondents, assessing intention to join a generic \"brain health\" registry and to join a registry that required specific tasks. RESULTS: Intention to join a registry was low (M 3.48, SD 1.77), and lower than intention to join a registry requiring specific tasks. Intention was greatest for registries requiring completing surveys (M 4.70, SD 1.77). Differences in intention were primarily between White women and Black women; differences between other groups were limited to specific tasks required. DISCUSSION: The results indicate uncertainty about what a registry is, its purpose, and/or the concept of \"brain health.\" Using the Reasoned Action Approach (RAA) to develop evidence-based outreach messages describing a registry and required tasks may increase diversity.","journal":"Alzheimer s & Dementia","year":2023,"id":359394,"datarank":0.0,"base_score":0.0,"endowment":0.0,"self_citation_contribution":0.0,"citation_network_contribution":0.0,"self_endowment_contribution":0.0,"citer_contribution":0.0,"corpus_percentile":null,"corpus_rank":null,"citation_count":10,"citer_count":0,"citers_with_citation_signal":0,"citers_with_endowment":0,"datacite_reuse_total":0,"is_dataset":false,"is_dataset_confidence":0.9215,"is_data_producer":false,"deposit_databanks":null,"is_oa":true,"file_count":0,"downloads":0,"has_version_chain":false,"published_date":"2023-01-01","fair_score":null,"fair_percentile":null,"algorithm_id":"datarank_citation_only_1hop_v6","ranking_scope":"data_only","authors":[{"id":255132,"name":"Erin K. Maloney","orcid":"0000-0002-7905-1905","position":1,"is_corresponding":false},{"id":702580,"name":"Michael Hennessy","orcid":"0000-0001-7176-3089","position":2,"is_corresponding":false},{"id":413348,"name":"Kristin Harkins","orcid":"0000-0001-5360-1043","position":3,"is_corresponding":false},{"id":286073,"name":"Jason Karlawish","orcid":"0000-0002-6880-2865","position":4,"is_corresponding":false},{"id":479433,"name":"Rachel L. Nosheny","orcid":"0000-0003-4995-8319","position":5,"is_corresponding":false},{"id":702579,"name":"Amy Bleakley","orcid":"0000-0002-4539-4424","position":6,"is_corresponding":false},{"id":367060,"name":"Jessica B. Langbaum","orcid":"0000-0003-3848-1324","position":0,"is_corresponding":true}],"reference_count":36,"raw_metadata":null,"created_at":"2026-07-19T01:13:52.889556Z","pmid":"37204220","pmcid":null,"fwci":null,"citation_percentile":null,"influential_citations":0,"oa_status":null,"license":null,"views":0,"total_file_size_bytes":0,"version_count":0,"fair_f":null,"fair_a":null,"fair_i":null,"fair_r":null,"fair_zscore":null,"fair_rationale":null,"fair_model":null,"fair_agent_version":null,"fair_fulltext_source":null,"fair_has_llm":null,"fair_computed_at":null,"clinical_trials":[],"software_tools":[],"db_accessions":[],"linked_datasets":[],"topics":[]}